| Bill, your last post was wonderful. I am truly grateful as well for the anticipation I see in my daughter as we talk about our MaW trip, she just came home from the hospital today, and she is such a trooper, but sometimes it's just hard.
She has such a great team at OHSU taking care of her, and they do everything they can to make her stays fun and not a *punishment* for getting sick. The IV nurses putting in her PICC IV line ran the ultrasound around her arm looking for the vein that was saying "pick me, pick ME, I want the PICC line", making her giggly. The respiratory therapist wadded up a paper towel and put it in her nebulizer tube so she could blow it out like a spitwad and do her therapy that way. (making her hysterically giggly) But it still stinks that my baby came home with an IV in her arm and meds to last for two weeks. Sometimes having a *happy place* to go to is another lifeline, something that helps you keep a smile on your face and a strong will for your children to keep fighting.
Thank you for expressing what so many of us feel and cannot find words to express.
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